So, I know I have made a forum about ALS and donations yesterday! This isn't another about ALS but another organization called Join Our Boys, this organization is set up and ran by a family in Ireland. They live in Roscommon in Ireland and have three kids, three boys, who sadly were all diagnosed with Duchenne Muscular Dystrophy! Within a matter of months this family have had family days with appearances from Jedward! They had another boy record a song and put it on iTunes for 1€ and all proceeds went to the organization! Pub quizzes, bake sales, pop up shops etc. have been put in place to raise both awareness and money for this traumatic disease! Recently in the Rose of Tralee one of the roses was made an ambassador for Join Our Boys! Here's some facts about DMD, • Duchenne Muscular Dystrophy (DMD) is a progressive neuromuscular disease that destroys muscle tissue and it is currently fatal. • It is the most common, lethal genetic disorder diagnosed during early childhood. • One in every 3,500 baby boys are born with DMD worldwide. • 20,000 children are diagnosed with this horrific disease annually, in the developed world. • There is no treatment or cure at present. • DMD knows no cultural, ethnic, economic or social boundaries; it can happen to any family. • DMD is typically diagnosed in children between the ages of 3 and 7. • It almost exclusively affects boys, causing them to be wheelchair bound, usually between 8 – 12 years of age and leaves them fighting for their lives by their late teens to early twenties. • It is now estimated that globally 200,000 children are diagnosed with DMD. • DMD is caused by a lack of dystrophin, a protein in the muscle, which would otherwise hold the muscles together. • There is a lack of awareness of DMD worldwide. • There is a severe lack of funding for research into DMD Internationally. • The research is complex, lengthy and because of this it is expensive. • Likely behavioural characteristics include limited social skills, attention deficits and depression! So yet again another lengthy thread from me, I just feel it isn't noticed enough worldwide, the reason I am posting is because I am involved with this charity, I know the boys, and I know that they probably won't make it past 21! It's too late for these special unique gorgeous boys, but hopefully this organization can one day help find a cure for DMD, so I'm not asking for donations, I'm making this known, so if YOU want to know more or even just volunteer to your local organization you now know they are out there and they are in desperate need! If you do wish to Join Our Boys, by all means you can, simply go to www.joinourboys.org! Again thank you for reading and sorry for the length